Last March, a doctor told me I had polycystic ovarian syndrome, or PCOS. This is when your ovaries fill up with cysts and it makes your cycles crazy and throws your hormones out of alignment and turns your body into a mess. Women who have PCOS tend to be insulin resistant, which is a pre-cursor to Type II diabetes. She based this diagnosis on routine labwork and the things she saw are the things that indicate this PCOS deal. However, an ultrasound revealed no cysts. My insulin level was normal. The majority of women who have PCOS are overweight (pear-shaped, my doctor emphasized for some reason), but I am not overweight.
PCOS causes all kinds of fucked-up things. It can cause infertility, it can cause women to grow facial hair, and, like I said, it can cause diabetes. These things are not cool.
I’ve been having a hard time with the diagnosis. Look, I’m a hypochondriac. I’ve been preparing my whole life for tumors and brain cancer. Diabetes or pre-diabetes was never on the radar. According to charts and tests, I’m incredibly low risk for diabetes. I workout. I can’t say that I completely avoid bad food, but I don’t drink soda, I don’t eat fast food, and my desserts consist of raisins or pears or grapes.
So I had a hard time swallowing this. I was being told I had a syndrome even though I didn’t have any real symptoms of the syndrome and I didn’t fit the profile of someone who had the syndrome.
She gave me Metformin, which is a pill that helps your body regulate insulin. I sat on the drug for a few weeks and then finally called her back and was like, look, I’ll take the drug but I’m just confused about how I have this syndrome. When I say confused, I mean I was having panic attacks. I hate taking pills. I never go to the doctor for antibiotics. My grandma took a drug for cholesterol and it fucked her liver up and now she takes a drug for her liver. I have normal insulin levels, I don’t have cysts, and I’m not overweight.
I did some digging around. You can have PCOS without being overweight. If you are a heavy carb eater (which I am–breads, pasta, cereal, and granola bars are my favorite things), then you can develop this condition. As you get older, insulin resistance causes more obvious problems.
I also found some vague symptoms of PCOS that I did have. Irregular periods, mostly.
I’m not saying I don’t believe I have PCOS or that I’m not insulin resistant. I’m saying that it didn’t make sense to me.
When I went to the Endo for the hair shedding, I told her I’d been diagnosed with PCOS and she said, OK, we’ll do labwork. Later, she said the same things my last doctor did. Look, she said and pointed to my labs, wacky hormones and wacky hormones the way they show up with you indicate insulin resistance, aka, PCOS. But no cysts. No insulin problems.
Aside – If PCOS doesn’t necessarily mean cysts, then I think they should change the name of it.
I again stared at this drug, but again stopped because I hate pills so much and I couldn’t/can’t see the medical necessity. Goddamn it, why do doctors always want to give you pills? No one asked me about my diet. No one asked me about my workout habits. No one suggested lifestyle changes. That pissed me off.
I looked up a bunch of information about handling PCOS without medication. You basically treat yourself like a diabetic. Low carb, low sugar, high vegetables, high protein.
This is what I heard over and over: There is a syndrome out there, but you don’t have any symptoms of the syndrome, but you have the syndrome and here’s some medication.
Am I crazy? Am I being a lunatic about this? Generally, I’m pressing doctors to tell me I have something. For the last ten months, I’ve been trying to prove that I don’t have something. I can’t wrap my mind around this.
I made an appointment with my primary care doctor, who I really don’t know, but I’ve been to that office once or twice and I list them as my GP.
I sat in her office and I basically had a freak out. I don’t get it, I said. I’ll accept it. I’m not saying I won’t accept it. I just can’t see how it’s possible. No one can explain to me how I have something when I don’t match the profile and I don’t have the symptoms.
Well, she said, looking over my labwork, your hormone levels….
Yeah, I said. I get it about the hormone levels, but can’t wacky hormones be caused by something other than insulin resistance? How is that possible when my insulin levels are normal?
She asked me if I’d ever done a fasting blood test, and I said no, but I’d read about them and I wanted one.
Famous last words.
This morning, I went to the lab for a glucose tolerance test, which is a nightmare. It’s not a nightmare in the sense that, like, a Mexican drug cartel isn’t hunting me down to behead me, but it’s a nightmare in the sense that I couldn’t eat and I had to sit around a waiting room for three hours to get my blood drawn every half hour.
Six draws. You should see my arms. I look like a junkie, and I am not kidding.
I usually take opportunities to write in my notebook. Waiting rooms are good for people watching. But I’ve been in too many waiting rooms the last few months, and I’ve watched too many people, and I’ve grown weary of my own games. Between draws, I caught up on podcasts and looked at my shoes.
Maybe I am insulin resistant. Maybe this test will come back and say that. Then I’ll explore options. I’d love to try diet changes first. No more cereal. No more pasta for dinner.
Vodka doesn’t have any sugar. So, thank God.
Anyway, so I wasn’t really watching people, I was just trying to get through it. Until the end. It was 11:50, and I had one draw left. I also had a headache. They were coming for me in about five minutes. My head was fuzzy from not eating, and I was annoyed that I was still sitting there. A woman came in wearing a t-shirt and jeans and had wild, fried blonde hair. She sat across from me, and I happened to look up at her. She had a tattoo on the inside of her left wrist that read: Tesla.
I sat there and pondered that awhile. The band Tesla? Or the inventor Tesla?
They called her name, and she stood. I watched her walk back and she wasn’t just wearing any old t-shirt. It was a Tesla concert t-shirt.
You must really like Tesla, I thought. Like, I thought it so hard I was sure I’d said it out loud.
Isn’t that dumb? Obviously she likes Tesla.